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gogs
#21 Posted : Friday, December 27, 2013 11:00:17 PM Quote
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Location: Cheshire
Thanks for the tips Paul..
I will try and get some of that tea next time I'm shopping, I don't use gingerSmile

I have stopped looking at the clock when I wake up hoping that by doing something different and not focusing on it
might help. Strangely it is allowing me to turn over and drift off again for another hour or so. Then I just 'day dream'
until I can stand it no longer and get up, but now it's near to six instead of three!!

ProgressThumpUp

Gogs
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Paul Barrett
#22 Posted : Saturday, December 28, 2013 10:17:24 AM Quote
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Hi Gogs

Some times I feel as I have been awake for hours but my wife tells me I was sound asleep. I wonder if we are actually dreaming about being awake when in fact we are asleep!! The dream zone is not the deep sleep that we crave.
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
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julie_warwick
#23 Posted : Saturday, December 28, 2013 10:56:44 AM Quote
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interesting to hear about injectable steroid as I am on 30mg pred. orally daily and trying to reduce it on my gps advice due to high blood pressure and horrible palpitations. so far down to 25mg and feel like I've been hit by a baseball bat ! they want to replace the pred. with depo-med inj. eventually. I am an insomniac too , go straight to sleep as I am so blinking shattered then wander about like the living dead in the early hours , glad it's not just me. I assume this happens too with the injections.. was hoping not Sad
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Paul Barrett
#24 Posted : Saturday, December 28, 2013 12:17:42 PM Quote
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The injectable doesn't have so may side effects due to it slower absorption. But for me it was pretty useless for the same reason I guess.
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
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gogs
#25 Posted : Saturday, December 28, 2013 1:25:04 PM Quote
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Location: Cheshire
Hi Julie,

Injectable steroids do not have the same effects as oral, neither do you have the same dependency on them, and the added difficulty
of weaning yourself off them.

Paul says they are slow to act but I'm not sure this is the case. If you are in great pain, unable hardly to move, your joints being so swollen, stiff, inflamed
and painful ( as I was most of this summer), given an IM injection and within 24 hours you become a new person. Steroids taken orally do not work this fast,
that's one of the reason's they use intramuscular steroids in severe cases.

Unfortunately in the long term both have the same side effects, a couple (those of you who are on steroids) of those effects you are probably suffering from now - thinning skin
and a dependence on the drug stopping you from reducing the dose sufficiently to reduce the problematic side effects.

My only complaint is the sleeplessness. I have gone from a perfect sleeper to one who craves for those times back again.

Gogs
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suzanne_p
#26 Posted : Saturday, December 28, 2013 7:09:02 PM Quote
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just read through the replies and going back to the fatigue,

i know steroids can really disturb your sleep.

i also know a lot of my posts mention that i am a poor sleeper but in all honesty this is my main problem, not really related to RA, although i know the fatigue of whether i sleep well or not is. i have been a poor sleeper all my adult life.

just as a by line .. when i started on Methotrexate coming up 4 years ago and upped the dose gradually from 7.5 i think i started on and ended up on 20mg, my sleep went right of the window, it isn't on the list of one of the side affects but as my Consultant told me at that time it doesn't mean it won't happen. but the main point is that it gave me very disturbed dreams, well i wasn't in a deep sleep so i felt very troubled especially in the early hours, it's posted somewhere on here i think i put a Thread called Methotrexate and Sleep.

so really what i'm saying is that any drug can cause us problems, so i don't rule out any symptoms of side affects now.

i then had my Methotrexate reduced back to 10mg and took that along with Hydroxychloroquine, nowadays i am on Humira plus the 10mg Methotrexate.

i have only ever had Depo steroid injection and some worked well and some didn't .. again i had a side affect not listed, after a few of them i came out in hive's as soon as i had it, didn't think anything of it first time but second time it happened again so now that's on my records and i choose not to have one now although fortunately i don't need it.

i'm just posting this for anyone new reading, as i know Steroids are known for poor sleep, had no idea that Methotrexate could have affected me this way.

Suzanne
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gogs
#27 Posted : Saturday, December 28, 2013 9:49:17 PM Quote
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Location: Cheshire
Thanks for that Suzanne.

I am beginning to get a bit fed up with folk I see both at the hospital and on a daily basis giving me the 'benefit' of their wisdom
on how to get a good nights sleepSad

I have always been a good sleeper - enviable my best friend used to say when we went on our walking holidays. Suddenly now I've become a poor
sleeper I'm informed it must be because I have 'poor sleep hygiene'. I feel like spitting in their eye. They're not listening to me, I never said I was ALWAYS
a poor sleeper, only since I started having IM steroids. I've even had it implied that perhaps I'm under too much stress. I am under stress - with them and their distorted ideas!Mad

GogsSmile
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julie_warwick
#28 Posted : Sunday, December 29, 2013 2:27:22 PM Quote
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thanks everyone. will let you know how I get on x
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Angiecha
#29 Posted : Monday, December 30, 2013 2:18:24 PM Quote
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Location: Lowestoft, Suffolk
Quote:
I'm informed it must be because I have 'poor sleep hygiene'
Isn't it lovely that everybody is an expert on what is wrong with you and what you should do despite not having an inkling of what RA is Blink of course they do also have a tendency to jump on the latest health bandwagon too. ThumbDown

Gill - I'm with JPH and my consultant deemed it unnecessary for me to have a DAS being in remission. Following prompting about my toes he decided my arches had fallen (my weight of course) and I should be wearing my orthotics (which give me callouses). I did ask if I should just learn to put up with pain in my toes and he said yes. To my surprise, I have received a letter to say that I have been referred to the podiatrist.

Sometimes wish I'd stayed with NUH as they have more of a RA support team there. It's a long journey though and work don't like us taking time off for appointments (not that that would stop me).

I've joined a different gym and encountered an excellent instructor sensitive to my needs whilst still ensuring I exercise to my full ability (I still ache from yesterday). Hope the motivation remains as I definitely felt less stiff afterwards and desperately need to get rid of some excess body. Being back at work and sat at my computer, the stiffness is well evident again even though it has been adapted - it's just sitting all the time that does it so I make sure I have lots of visits to the tea point. ThumpUp

Angie
Be yourself - everyone else is taken. XX
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